Jamie Fuller and his mum Bridget Collier, from Warfield, missed a two-week holiday to the USA in May after Mr Fuller was admitted to Frimley Park Hospital with clots on his lungs and a rare infection called candida caused by the disease.
The family were quoted an £8,349 travel insurance bill if Mr Fuller had attempted to travel with an oxygen supply on the trip – which had been planned since August last year – forcing him and his mum to stay at home.
As a result, Mr Fuller and his brother Grant are organising a fundraising day at Bracknell Hockey Club, at the Birch Hill Recreation Ground, on Sunday, August 24, to raise money to find a cure for the disease. Mrs Collier said: “We thought that amount of money [travel insurance] was ridiculous; no-one can pay that. So, we thought we wanted to raise as much money as possible to help try and find a cure for cystic fibrosis so families in our situation don’t have to go through this.”
Mr Fuller, 20, was diagnosed with the disease at three months old and currently has about 32% lung function. He takes medication and uses nebuliser treatment, and it is likely that he will need a lung transplant.
Mrs Collier added: “It is a life-threatening disease that will eventually affect every organ in the body, but all you can do is keep doing as much as you can. It’s just a question of how much time you have.”
The fundraiser is being held at the hockey club as both Mr Fuller and Mrs Collier coach at the Boxfit fitness clubs hosted at the club. The event will feature a host of activities ranging from mini football tournaments and inflatable games to boot camp fitness sessions and stalls.
It is hoped that Bracknell Forest mayor Cllr Alan Kendall will open the event.
Mrs Collier added: “Any support people could give would be amazing and make a real difference; if they want to have a stall, volunteer with setting up, anything would be appreciated.”
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